International thalassemia Day

 International Thalassaemia Day: Raising Awareness and Support
International Thalassaemia Day is observed annually on May 8 to raise awareness about thalassaemia, a genetic blood disorder that affects the production of haemoglobin. This day is dedicated to celebrating the thalassaemia community worldwide and advocating for health equity, accessible care, and advanced therapies for those affected.

History and Significance
International Thalassaemia Day was established in memory of George Englezos, the son of Panos Englezos, the President and Founder of the Thalassaemia International Federation (TIF). The day serves as a focal point to advance advocacy efforts for thalassaemia at local, national, and international levels .

Theme and Objective
The theme for International Thalassaemia Day 2025 is "Together for Thalassaemia: Uniting Communities, Prioritizing Patients," emphasizing the importance of patient-centric care and community unity. The objective is to :
- *Raise Awareness*: Increase understanding and knowledge about thalassaemia, its symptoms, and impact on individuals, families, and communities.
- *Support Patients*: Prioritize patients' needs, rights, and voices in healthcare practices.
- *Promote Equity*: Advocate for equitable access to diagnosis, treatment, and care for people living with thalassaemia.

Ways to Get Involved
1. Share Your Story: Write about your experiences, challenges, and learnings from living with thalassaemia to inspire others.
2. *Illuminate*: Light up a significant landmark or building in red to show support for people living with thalassaemia.
3. *Join Events*: Participate in global events and activities organized by TIF and its member associations.
4. *Spread Awareness*: Use social media to raise awareness about thalassaemia and the importance of patient-centric care ³.

Conclusion
International Thalassaemia Day is an opportunity to come together as a global community to support individuals living with thalassaemia. By raising awareness, promoting equity, and prioritizing patients, we can work towards a future where everyone has access to quality care and treatment. Join the movement and make a difference in the lives of millions of people with thalassaemia worldwide.

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